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Pauly Pagenhart

The Alphabet Soup – Episode 2: Family Activism Edition

https://vimeo.com/123242715

In the second episode of The Alphabet Soup with Our Family Coalition, Julia and Zach of The Rainbow Letters share inspiring and powerful stories about growing up with parents who are lesbian or gay. Listen in to an engaging conversation with Willy Wilkinson on parenting, activism and his new book Born on the Edge of Race and Gender: A Voice for Cultural Competency.

Guests:
Zach Wahls and Julia Winston, The Rainbow Letters
Willy Wilkinson, Author, Activist & Parent

Host:
Judy Appel, Executive Director

Food for Thought with:
Renata Moreira, Policy and Communications Director
Our Family Coalition

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Trust Your Own Knowledge

 

While healthcare providers bring expertise in medicine, you are the expert on your own body, experiences, and needs. If something doesn’t feel right, trust yourself and communicate your concerns. Phrases to lean on: “This is not normal for my body” “I have never experienced these symptoms before now” … 

Advocate for Comprehensive Explanations

You have the right to fully understand any diagnosis, treatment, or procedure. Don’t hesitate to ask for explanations that make sense to you. For instance, say, “Can you walk me through how this treatment will work?” or “What are some possible side effects?” “What should I look out for?” 

Right to Informed Consent

You have the right to understand all aspects of your care, including the risks, benefits, and alternatives. Never feel pressured into any procedure without clear information.

Confidentiality Protections

HIPAA laws safeguard your privacy and health information. Healthcare providers must keep all your personal health information confidential.

Anti-Discrimination Protections

Federal laws like Section 1557 of the Affordable Care Act prohibit discrimination in healthcare on the basis of race, color, national origin, sex (including gender identity and sexual orientation), age, or disability.

Pause and Reflect

If you’re unsure about a treatment recommendation, it’s okay to take a pause. Say something like, “I’d like to take some time to consider this before making a decision.” This gives you the space to process without feeling pressured. You can discuss a timeline with your provider that works for you. It is okay to want more time.

Ask About Alternatives

You’re entitled to know if there are other options that might work for you. If a provider presents a single course of action, ask, “Are there other ways to approach this?” or “What other treatments might be possible?” or “Why are you recommending this treatment plan compared to alternative options?”

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